Who is QANA?

The Queensland Acoustic Neuroma Association (QANA) is a patient-headed, peer support group operating as a not-for-profit organisation. This mutual aid group provides information with newsletters, meetings and a support network.

History

QANA grew from interchange among patients who felt the need for support and   an information network. QANA was founded in June 1987.

Many who require treatment or undergo removal of acoustic neuromas (and other benign tumours involving the cranial nerves) have questions, concerns, and physical and emotional adjustments.

Membership in a group of those with similar experiences can be helpful to patients, as  well as family members and interested medical personnel.

Aims

  • To provide support to acoustic neuroma patients (or those with similar tumours), their family members and any other interested persons.
  • To gather and provide information to acoustic neuroma patients (or those with similar tumours), their family members and any other interested persons.
  • To increase awareness of acoustic neuromas, the association and the resources within the association.

QANA activities

  • Allows patients, and their family members, to share their experiences in a relaxed, non-medical environment. Symptoms, treatment options, ongoing issues, and problems arising from treatment, by surgery or radiation, are able to be discussed with other patients.
  • Responds to members’ social needs by providing a friendly setting where patients can chat, laugh and share a meal with people who truly understand their situation.
  • On occasions, holds talks by a range of health professionals including speech pathologists, physiotherapists, audiologists and radiotherapists.
  • Provides information on the latest hearing aids and technological gadgets that may assist a patient after treatment.
  • Holds bi-monthly meetings (second Saturday of the month from February to October) and publishes a bi-monthly newsletter.
  • Assists in the activities of the Biennial Queensland Acoustic Neuroma Conference.